Summary

What is your experience?

Media caption,
The BBC's Catherine Burns examines what's in the new report
  1. Rise in diagnoses is pushing up costs for taxpapers, warns policy analystpublished at 15:48 BST

    Shimeon Lee is pictured speaking to the BBC via video link, wearing a suit and tie.

    Speaking to the BBC, Shimeon Lee from the TaxPayers' Alliance says the current system "was not designed to cope" with such a surge in mental health diagnoses.

    He says that Britain has an "unusually generous disability benefit system" and that as more people are diagnosed with certain conditions, such as ADHD, the "system is increasingly getting overwhelmed and is struggling to deliver".

    "It's not working for both the people who do need help and the taxpayers who pay for it," he says, adding the support for mental health conditions should become "a lot more targeted".

    "That's the only way the system can remain fair, affordable, and sustainable in the long-run," he says.

    Lee adds that some parents are incentivised to seek a mental health diagnosis for their children due the greater level of support that comes with it, in turn pushing up costs for taxpayers.

  2. Heavy social media use is a factor in young people's rising mental distresspublished at 15:41 BST

    Katie Williams
    Live reporter

    Swansea University psychology lecturer Simon Williams stands outside building wearing blue jacket and black t-shirt

    Social media is one of the factors the review team blames for the rise in mental distress amoung young people.

    Swansea University psychology lecturer Simon Williams tells me it's not just issues like cyber-bullying and disinformation, but also the "opportunity costs" that come with spending a vast amount of time online.

    Children are "missing out on opportunities for face-to-face interaction", he says, adding that it's happening at an "increasingly young age".

    The independent review published today found that young people are living in a world where there is "less belonging and more loneliness" than in the past.

    Williams says in his view, it's partly social norms and "peer pressure" that are driving overuse of social media among young people.

  3. What the report says about waiting times for ADHD and autism assessmentspublished at 15:31 BST

    Recognition of ADHD and autism has risen dramatically, leading to hundreds of thousands of people awaiting diagnostic assessment, the report says.

    Here are some of the figures it gives on waiting times for assessments:

    • The report says that monthly referrals for ADHD assessments have "more than tripled from around 5,000 in 2019 to around 17,000 in 2024", according to data from NHS England
    • By the end of 2025, open referrals for ADHD assessment sat at more than 560,000, which is more than 17 times the number recorded in 2019

    Across the NHS, the average wait time for adults is currently eight years and four years for children.

    • The report also points to a high demand for autismassessments. It notes - also citing NHS England data - that in December 2025 more than 254,000 people had an open autism referral, with 90% waiting longer than 13 weeks.

  4. 'I am autistic, I act different...but I'm still human'published at 15:23 BST

    Eli pictured. She has brown hair and is wearing glasses and a purple and white top

    Eli from Sheffield was diagnosed with autism last year while she was in Year 13 at college, long after first pursuing an assessment.

    She tells the BBC securing exam arrangements was the main hurdle for her: "I couldn't get a smaller room or anywhere because there was no evidence of me being autistic, and we needed the evidence".

    Her teachers were understanding and knew she needed help, but she says "they were stuck in sort of a paperwork issue".

    Eli voices her frustration at being "ping-ponged" between different mental health services, when she feels she should have gone "straight to the neurodiversity waiting list".

    She is proud of her autism diagnosis and keen to tackle stigmas.

    "I openly say to people that I am autistic, I act different...but I'm still human and I'm still there."

  5. Diagnostic criteria 'very rigid', says founder of ADHD and autism assessment centrepublished at 15:13 BST

    Nicola Lathey is pictured seated on a wooden chair, smiling to camera and wearing a green top and blue blazer.

    A short while ago, we heard from Nicola Lathey, who set up the Owl Centre which provides diagnoses for ADHD and autism.

    She was asked whether concerns about private diagnoses are fair, after the independent review raised questions about the "consistency and quality" of assessments.

    "It's very difficult to answer that outright," she tells Radio 4's World at One programme.

    But she adds that existing guidance and protocols are "very rigid" and "don't leave gaps for your own interpretation".

    "All providers should follow the same protocols, which adhere to the CQC [Care Quality Commission] standards," she says.

    Asked whether there is a difference between these standards and actual regulation, Lathey says: "The problem has arisen because providers who don't offer a medication service for ADHD have been allowed to provide ADHD assessments".

    She says the CQC only regulates those with a medication service attached.

  6. Review raises 'strong concerns' about quality of independent ADHD and autism assessmentspublished at 15:07 BST

    The review also raises "strong concerns about the consistency and quality of ADHD and autism assessments being carried out by independent providers," as well as "the financial incentives" associated with these assessments

    • Independent providers now carry out "more than half of all NHS-funded ADHD assessments and more than a third of autism assessments", it says, citing 2026 data from the Center for Health and the Public Interest
    • Spending on independent-sector ADHD provision - this is the money the NHS pays independent providers of assessments and care - has risen by around 252%in three years

    Though the report stresses that it is not criticising independent provision "in principle", it says that this process runs "without consistent oversight, transparency or quality assurance".

    In response, the government has promised a new Mental Health Strategy to regulate ADHD and autism assessments to ensure they are "high quality".

    Media caption,

    Report highlights flaws in ADHD and autism care

  7. MP's post bag 'chocka full' of parents who can't get help for their childrenpublished at 14:59 BST

    Liberal Democrat MP Layla Moran stands at a podium wearing green jacket and white shirt with hand over heart. Party colour of orange decorates the podium and the backgroundImage source, Getty Images

    Liberal Democrat MP Layla Moran tells Radio 4's World at One programme: "I really welcome this review."

    She says the Health and Social Care select committee, which she is part of, has teamed up with the Education select committee and is doing a joint inquiry into children's mental health.

    She says the "thesis question" they have come to is: are children and adult mental health services "frankly broken"?

    Moran says the post bag in her constituency of Oxford West and Abingdon is "chocka full" of parents of children saying they can't get help they need and "just can't afford" to get a private diagnosis.

    There is "very clearly a big problem here", she says.

  8. Remind me: What is ADHD, exactly?published at 14:51 BST

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  9. 'My ADHD meant I slept through an A-level exam'published at 14:38 BST

    Miya Chahal
    BBC Newsbeat

    Caitlin Labonte poses with flowers in graduation attire on her graduation dayImage source, Caitlin Labonte

    Caitlin Labonte describes her journey to getting an ADHD diagnosis as "long-winded".

    "Before I was diagnosed I really struggled with my sleep," she says. "I actually slept through one of my A-levels so I missed one of the exams."

    Around the same time, she was diagnosed with depression and anxiety but spent a year on a waiting list to check for ADHD. When she turned to a private clinic, she says "within three months I was diagnosed and medicated".

    Labonte doesn’t accept that private clinics are over-diagnosing and believes patients "won't get diagnosed if they don't have it".

    "We're raising more awareness," she says.

    "We should be celebrating that we're getting these incredible opportunities to help more children get diagnosed, to help more women get diagnosed, more people of diverse backgrounds diagnosed."

  10. What are Neets, and how might this review affect them?published at 14:26 BST

    Kate McGough
    Education reporter

    A young person is considered "Neet" if they are aged between 16 and 24 and are not in education, employment or training.

    They could be unemployed and looking for work, or what’s known as "economically inactive", which means they’re not looking for work – which could be because of caring responsibilities, or health reasons, for example.

    Nearly a million young people (981,000) were Neet between April and June this year, according to the latest stats from the Office for National Statistics. That's about one in eight young people in the 16-24 age range.

    The Fonagy review was ordered to look into the rise in mental health issues among young people, as well as referrals for conditions like ADHD and autism.

    Both of those can be linked to difficulties during school, including persistent absence, which can then lead to a greater risk of a young person becoming Neet.

    The review's recommendations could therefore have repercussions for government policies on how to intervene earlier in young people's lives to reduce that risk.

    Another review looking specifically at why the number of Neets is so high, led by Alan Milburn, is due to be published later this year.

    A chart shwoing how the number of Neets has increased since 2020.
  11. 'Young people feel blamed for their mental health'published at 14:07 BST

    Beth Rose
    Disability affairs reporter

    The charity Young Minds, which supports young people with their mental health up to the age of 25, says "now is the time for action and investment".

    "For years, young people have told us they feel blamed for their mental health or accused of making it up," says Abigail Ampofo, interim chief executive.

    "We hope this review goes some way to show them their distress is not their fault and the systems around them are failing."

    The national disability charity Sense, which supports people with autism, ADHD and mental health conditions, says it "strongly welcomes" the review's recommendation for more individual support, but says it is "vital" that disabled people with complex needs are not "overlooked" in any reforms.

    Chief executive James Watson-O’Neill says success shouldn't be measured in the number of diagnoses or shorter waiting lists, but in "whether disabled people have a better quality of life".

  12. What is driving change in young people's mental health?published at 13:54 BST

    A young person is shown leaning against a concrete wall wearing a blue hoodie, with their hands clenched in front of their face in a look of apparent despair or distress.Image source, PA Media

    As we've been reporting, the review has pointed to a "a very real rise" in mental health problems in young people. It lays out multiple environmental factors that have contributed, including:

    • Schools:Are "more focused on high-stakes assessment", with fewer chances for "unstructured time", or physical, creative and vocational learning
    • Community infrastructure:Things like youth services - have "eroded" over the past 15 years
    • Jobs and living situation:A "less secure labour market", a rise in student debt, an increase in private renting alongside a drop in home ownership, and a rise in the proportion of those living with parents into adulthood
    • Covid: The pandemic "interrupted" experiences that "support belonging, competence, autonomy and confidence in the future"
    • The digital world: While it stresses that it's "difficult" to estimate the effect of digital environments on mental health, many online experiences - including social comparison, body dissatisfaction, sleep disruption, cyberbullying, harmful content - chime with difficulties young people raised elsewhere in the review

    The report also says that there has been a "changing understanding of mental health and neurodevelopmental conditions".

    It points to a "greater awareness of" and "wider use" of psychological language, which has "reduced stigma, improved recognition" and "brought previously unrecognised needs into view".

  13. Years-long waitlists and lack of support - your experiencespublished at 13:34 BST

    A common theme among those with ADHD and autism who we've been hearing from this morning is a struggle with access to a diagnosis and additional support.

    • It took eight years until Heather Carpenter'sson was formally diagnosed with autism, but she recalls the anguish as they waited and the relief afterwards as she realised "he wasn't a bad kid and I wasn't a bad parent"
    • Twenty three-year-old Jasmine King says everything in her life is "on hold" while she waits for a diagnosis - "I have no support, no medication and no full understanding of myself"
    • While Christine Adams, whose seven-year-old grandson has been waiting four years for an assessment, says teams at his primary school say they can no longer meet his needs
    • Amy, who got an ADHD diagnosis in 2023, says a lot of women like her go under the radar and are "forgotten about" because they don't "present in the normal way people assume ... the naughty child in school"
    • Ryan and his wife first realised their son Atlas was missing development milestones when he was around 12 to 18 months, but it took three years for them to get an autism assessment - he's now nearly seven, non-verbal and still wears nappies. Ryan's main frustration is the lack of a fast-track route for children, like Atlas, with more complex needs
    A purple banner with the words 'Your Voice' on it in white lettering.
  14. 'Other generations just buried it' - Youths share their mental health concernspublished at 13:24 BST

  15. Report warns of rise in mental ill health but shows risk of over-diagnosis for ADHD and autismpublished at 13:07 BST

    Imogen James
    Live reporter

    Today's review was commissioned by Wes Streeting last year when he was health secretary, in the wake of comments he made to the BBC's Laura Kuenssberg.

    He told her he believed there was an "over-diagnosis" of mental health conditions.

    Today, the author of the report Prof Peter Fonagy says Streeting was "completely wrong".

    His says his findings show that "there has been a rise in distress and mental ill health amongst young people which is very, very real".

    The general secretary of the National Education Union says the review shows this rise is related to "greater educational pressures, social media, loneliness and insecure housing".

    Want a rundown of what ADHD, autism and mental ill health are? Read our explainer from earlier.

    The report said the increase in diagnoses for those with ADHD and autism was down to the fact that many had remained undiagnosed.

    But getting a diagnosis isn't a quick process. We've been hearing from people on the waiting list, who have told us how hard it is to remain in the dark.

    Jasmine King, 23, has waited nearly five years for an NHS ADHD assessment and says the impact has been "unbearable".

    Natasha says she's in a state of limbo, two years into her time on the waiting list.

    But the risk of over-diagnosis going forward is real, given the rate at which diagnoses are increasing, our health correspondent Nick Triggle explains.

  16. Cuts in community, youth services a contributing factor to rise in mental distress - reviewpublished at 12:50 BST

    Nick Triggle
    Health correspondent

    A young teen sits on the ground wearing a black T-shirt and khaki jeans, a backpack next to himImage source, Getty Images

    The rise in mental distress among young people is down to a variety of factors, according to the review.

    Economic uncertainty is a key one. But the authors have also cited cuts to community and youth services over the past decade, saying that has resulted in a loss of a sense of belonging and less social interaction.

    Loneliness among young people has been on the rise for the past 20 years.

    That rise in loneliness also coincides with the explosion in mobile phone use and the move into the age of social media.

    People have become more reliant on their phones for interactions - and less likely to socialise face-to-face. This was exacerbated by Covid.

    The review authors said it should come as no surprise this has lead to more distress because research shows personal relationships and feeling part of a community are crucial to good mental health.

  17. Occupational therapist highlights risks in failings in support for childrenpublished at 12:37 BST

    Rozina Sini
    BBC Your Voice

    Your Voice banner - purple background with your voice in white

    Lauren Tann is an occupational therapist in Derbyshire who works with children with high functioning autism and ADHD.

    One of the biggest issues among those she works with is children with "extremely low self-esteem due to the failings in support".

    Tann says in the most extreme cases, she's seen children as young as 10 experience self-hatred and self-harm.

    She says it's important to help those with these conditions and "educate the rest of the population on the difficulties they face and therefore reduce the associated mental health risk".

    She also warns that with a growing population, the number of people with these conditions is also due to grow.

    On top of that, Tann adds, "the lack of appropriate diagnosis previously means adults did not know their struggles were due to this".

  18. Grandmother voices frustration as seven-year-old waits four years for assessmentpublished at 12:23 BST

    Rozina Sini
    BBC Your Voice

    Your Voice written in white over a purple background

    Christine Adams from Tameside has shared with the BBC her seven-year-old grandson's struggles with getting diagnosed.

    She says he's been waiting for an autism and ADHD assessment for more than four years. While he has an education, health and care plan (EHCP) in place at a mainstream school, the school's special educational needs coordinator thinks they can no longer meet his needs.

    "Everyday life can be very stressful and difficult, but without a diagnosis possible treatment and professional input cannot happen," Christine explains.

    "The system is failing."

    Christine Adams pictured. She has short hair, wears glasses and is wearing a knitted topImage source, Christine Adams
  19. Rise in mental health conditions tied to ‘greater educational pressures’published at 12:11 BST

    Hazel Shearing
    Education correspondent

    In the foreground, a teen boy in a beige zip-up shirt with a hoodie leans on a school table with his head resting on his right hand, which is holding a pencil as he looks down at something on the table. In the blurred background, is a teen girl with long, curly brown hair wearing a pink jumper and jeans, also sitting down down at a school deskImage source, Getty Images

    The review shows the rise in mental health conditions is related to “greater educational pressures, social media, loneliness and insecure housing”, the general secretary of the National Education Union says.

    Daniel Kebede says plans for Year 8 pupils in England to sit reading tests will “add to pressure at school”.

    He says young people are “waiting too long” for mental health appointments and “missing vital education in the meantime”.

    “Teachers are not specialists and cannot carry on picking up the pieces," he says.

  20. What does the report say on over-diagnosis?published at 11:57 BST

    Nick Triggle
    Health correspondent

    When Wes Streeting claimed young people were being over-diagnosed with ill mental health, ADHD and autism, he caused controversy.

    The review team is adamant the rise in mental distress is real – placing the blame on economic uncertainty, the impact of Covid and social media.

    But the same is not true for ADHD and autism. It said the proportion of the people in the population with those neurodevelopmental conditions was broadly stable.

    Instead the increase in diagnoses that had been seen was down to the fact many had remained undiagnosed, the review said. Greater awareness had seen more people come forward for help, but there was now a risk of over-diagnosis.

    It said it could not say that was happening at scale currently, but the risk certainly going forward was real given the rates at which diagnoses were increasing.

    This is particularly in younger age groups where they already appeared to be outstripping the expected number of cases in the population – although they said they could not be absolutely certain because of weakness in the data.