Summary

What is your experience?

  1. Report warns of rise in mental ill health but shows risk of over diagnosis for ADHD and autismpublished at 13:07 BST

    Imogen James
    Live reporter

    Today's review was commissioned by Wes Streeting last year when he was health secretary, in the wake of comments he made to the BBC's Laura Kuenssberg.

    He told her he believed there was an "over-diagnosis" of mental health conditions.

    Today, the author of the report Prof Peter Fonagy says Streeting was "completely wrong".

    His says his findings show that "there has been a rise in distress and mental ill health amongst young people which is very, very real".

    The general secretary of the National Education Union says the review shows this rise is related to "greater educational pressures, social media, loneliness and insecure housing".

    Want a rundown of what ADHD, autism and mental ill health are? Read our explainer from earlier.

    The report said the increase in diagnoses for those with ADHD and autism was down to the fact that many had remained undiagnosed.

    But getting a diagnosis isn't a quick process. We've been hearing from people on the waiting list, who have told us how hard it is to remain in the dark.

    Jasmine King, 23, has waited nearly five years for an NHS ADHD assessment and says the impact has been "unbearable".

    Natasha says she's in a state of limbo, two years into her time on the waiting list.

    But the risk of over-diagnosis going forward is real, given the rate at which diagnoses are increasing, our health correspondent Nick Triggle explains.

  2. Cuts in community, youth services a contributing factor to rise in mental distress - reviewpublished at 12:50 BST

    Nick Triggle
    Health correspondent

    A young teen sits on the ground wearing a black T-shirt and khaki jeans, a backpack next to himImage source, Getty Images

    The rise in mental distress among young people is down to a variety of factors, according to the review.

    Economic uncertainty is a key one. But the authors have also cited cuts to community and youth services over the past decade, saying that has resulted in a loss of a sense of belonging and less social interaction.

    Loneliness among young people has been on the rise for the past 20 years.

    That rise in loneliness also coincides with the explosion in mobile phone use and the move into the age of social media.

    People have become more reliant on their phones for interactions - and less likely to socialise face-to-face. This was exacerbated by Covid.

    The review authors said it should come as no surprise this has lead to more distress because research shows personal relationships and feeling part of a community are crucial to good mental health.

  3. Occupational therapist highlights risks in failings in support for childrenpublished at 12:37 BST

    Rozina Sini
    BBC Your Voice

    Your Voice banner - purple background with your voice in white

    Lauren Tann is an occupational therapist in Derbyshire who works with children with high functioning autism and ADHD.

    One of the biggest issues among those she works with is children with "extremely low self-esteem due to the failings in support".

    Tann says in the most extreme cases, she's seen children as young as 10 experience self hatred and self harm.

    She says it's important to help those with these conditions and "educate the rest of the population on the difficulties they face and therefore reduce the associated mental health risk".

    She also warns that with a growing population, the number of people with these conditions is also due to grow. On top of that, Tann adds, "the lack of appropriate diagnosis previously means adults did not know their struggles were due to this".

  4. Grandmother voices frustration as seven-year-old waits four years for assessmentpublished at 12:23 BST

    Rozina Sini
    BBC Your Voice

    Your Voice written in white over a purple background

    Christine Adams from Tameside has shared with the BBC her seven-year-old grandson's struggles with getting diagnosed.

    She says he's been waiting for an autism and ADHD assessment for more than four years. While he has an education, health and care plan (EHCP) in place at mainstream school, the school's special educational needs coordinator thinks they can no longer meet his needs.

    "Everyday life can be very stressful and difficult, but without a diagnosis possible treatment and professional input cannot happen," Christine explains.

    "The system is failing."

    Christine Adams pictured. She has short hair, wears glasses and is wearing a knitted topImage source, Christine Adams
  5. Rise in mental health conditions tied to ‘greater educational pressures’published at 12:11 BST

    Hazel Shearing
    Education correspondent

    In the foreground, a teen boy in a beige zip-up shirt with a hoodie leans on a school table with his head resting on his right hand, which is holding a pencil as he looks down at something on the table. In the blurred background, is a teen girl with long, curly brown hair wearing a pink jumper and jeans, also sitting down down at a school deskImage source, Getty Images

    The review shows the rise in mental health conditions is related to “greater educational pressures, social media, loneliness and insecure housing”, the general secretary of the National Education Union says.

    Daniel Kebede says plans for Year 8 pupils in England to sit reading tests will “add to pressure at school”.

    He says young people are “waiting too long” for mental health appointments and “missing vital education in the meantime”

    “Teachers are not specialists and cannot carry on picking up the pieces," he says.

  6. What does the report say on over-diagnosis?published at 11:57 BST

    Nick Triggle
    Health correspondent

    When Wes Streeting claimed young people were being over-diagnosed with ill mental health, ADHD and autism, he caused controversy.

    The review team is adamant the rise in mental distress is real – placing the blame at the economic uncertainty, impact of Covid and social media.

    But the same is not true for ADHD and autism. It said the proportion of the people in the population with those neurodevelopmental conditions was broadly stable.

    Instead the increase in diagnoses that had been seen was down to the fact many had remained undiagnosed. Greater awareness had seen more people come forward for help, but there was now a risk of over-diagnosis.

    It said it could not say that was happening at scale currently, but the risk certainly going forward was real given the rates at which diagnoses were increasing.

    This is particularly in younger age groups where they already appeared to be outstripping the expected number of cases in the population – although they said they could not be absolutely certain because of weakness in the data.

  7. 'It's like living life on hard mode,' 32-year-old awaiting diagnosis tells BBCpublished at 11:43 BST

    Joe McFadden
    Health reporter

    Natasha pictured wearing a black top and a black leather jacket

    I’ve been speaking to Natasha, a 32-year-old airline worker who has been on an ADHD waiting list for over two years - which has left her in a state of limbo and adding to the stresses of everyday life.

    Natasha suspects she has autism as well as ADHD but wants to get diagnosed through the NHS. This, alongside the already long wait for an ADHD diagnosis, has discouraged her from seeking further help.

    “I don't want to tell people, 'oh, I have ADHD' if I don't know for sure that I actually do have ADHD.”

    “It's really expensive to get a piece of paper that you don't trust," she says. “And because I also think I have autism, that's two diagnoses."

    “If it's not thorough, it's just money down the drain,” she adds.

    Compared to others, Natasha has lower support needs but says there are things that could be done to make it easier for her - and, as the report highlights, currently the main way to get help is through a diagnosis.

    “I'm exhausted a lot of the time,” she says. “I mostly get stuff done but it just feels like I'm living my life on hard mode.”

  8. 'Everything in my life is on hold'published at 11:25 BST

    Erica Witherington
    Disability affairs reporter

    Jasmine King, 23, has waited nearly five years for an NHS ADHD assessment and says the impact has been "unbearable".

    "I don't want ADHD," she says. "I want help for whatever it is I'm struggling with."

    She remembers sitting at the back of the exam hall at school with extra time and rest breaks, crying as other pupils completed their papers.

    She believes people whose difficulties have the greatest effect on their daily lives should be assessed sooner.

    "I am late everywhere and arrive at most places in tears from all the stress of trying to be on time," she says.

    In one job, she says she was criticised for being "too slow" and not using initiative. Trying to keep up left her stressed and exhausted, she says.

    "Everything in my life is on hold. I have no support, no medication and no full understanding of myself."

    She can't afford a private assessment and says repeatedly contacting her local ADHD service has brought no answers.

    "I don’t see the waiting ever ending," she says.

  9. What has the government done for mental health?published at 11:16 BST

    Yvette Cooper has short blonde hair, she wears a white shirt and blue jacket.Image source, PA
    Image caption,

    Health Secretary Yvette Cooper has welcomed the review and says a new Mental Health Strategy will be forthcoming

    Today's review forms part of the government's 10 Year Health Plan for England which was published last year under Keir Starmer's government. It's now a mantle that has been picked up by Andy Burnham's government.

    The plan has three pillars: hospital to community, analogue to digital, sickness to prevention.

    In August, the government announced a £343m expansion plan to open more than 150 NHS mental health centres in England - including centres for walk-in support and emergency departments - building on a previous initiative.

    Health Secretary Yvette Cooper has welcomed the findings of the Fonagy review and says they show "the importance of early intervention to address mental health and neurodevelopmental conditions".

    The government will work on a new Mental Health Strategy that will regulate ADHD and autism diagnostic assessments and ensure they are "high quality", she says.

  10. NHS ready to play its part in 'landmark moment' - NHS Englandpublished at 11:05 BST

    Dr Nick Broughton, who leads the national priority programme for mental health at NHS England, has called the review "a landmark moment" for our understanding of mental health needs across society, in particular among young people.

    Broughton says the NHS is "ready to play its part" in giving young people the best chance of succeeding "in a complex and ever-evolving society".

    He points to steps the health service has already taken to address challenges, such as ensuring six million pupils can access NHS mental health support in schools.

    Broughton adds that NHS teams are also "making it easier for people to get support for ADHD and autism conditions before and after diagnosis".

  11. 'It took eight years for my son to be diagnosed'published at 10:57 BST

    Rozina Sini
    BBC Your Voice

    Your Voice Banner - purple background, your voice in white

    Heather Carpenter's son, now 17, is autistic. She recalls both of them feeling failed by services while they waited eight years for his formal diagnosis.

    Carpenter recalls the suffering they both experienced until the diagnosis and the relief afterwards as "I realised he wasn't a bad kid and I wasn't a bad parent".

    "Those years are still coming back to play in his declining mental health," she tells us.

    Carpenter highlights the risks of private diagnoses, but she understands why some parents might resort to that to jump the queue.

    The answer, she adds, is a reform of NHS services to ensure proper assessments are done.

    Heather Carpenter pictured. She has short blond hair.Image source, Heather Carpenter
  12. 'Successive governments failed autistic people'published at 10:45 BST

    The review shows successive governments have failed autistic people, the National Autistic Society says.

    The charity’s Mel Merritt welcomes the government’s promise for action, noting that autistic people have a greater risk of poorer mental and physical health and it should be a priority to ensure they can “live a dignified life and be part of society”.

    On autism diagnoses, Merritt says the report shows it has a “considerable positive impact” in most cases.

    She points out that a reform can only happen with investment and building the NHS workforce capacity, which will take time.

    “Any attempt to move to a needs-led system that abandons those who are currently waiting for an assessment will only increase harm,” Merritt adds.

  13. BBC Verify

    Diagnoses of autism up in all age groups 6-24published at 10:35 BST

    The review shows that the rates of diagnosis of autism in England have risen significantly between 2000 and 2025 among all groups of young people.

    Children aged six to 11 have risen the most sharply, with 4.6% of children diagnosed with the condition last year compared to 0.2% at the turn of the century.

    Those between 12 and 17 are not far behind, rising from 0.1% recording a diagnosis in 2000 to 4.1% in 2025.

    Diagnosis of young adults between 18 and 24 has risen less but still significantly, from almost zero to 2.5% over the 25-year period.

    This Flourish post cannot be displayed in your browser. Please enable Javascript or try a different browser.

  14. 'Forgotten about' and 'demoralising': Young people share experience of getting diagnosespublished at 10:24 BST

    Radio 4's Today programme has been speaking to young people about their experience getting diagnosed with ADHD and autism.

    Amy went to her doctor in 2017 for depression and anxiety. Then, with her GP, she started to pursue an ADHD diagnosis - which she got in 2023.

    "A lot of specifically women are kind of under the radar and forgotten about," Amy says, suggesting it's because they don't "present in the normal way people assume... the naughty child at school".

    She is hoping this review will lead to "support and guidance after the diagnosis" which she says is "the part that's forgotten".

    Hassnat was diagnosed with ADHD at 14, but it wasn't until the age of 19 that he received a diagnosis of "Asperger's syndrome".

    "Leading up to that stage it was horrible," he says. "Growing up, it was just demoralising living with it".

    The diagnosis was "a relief", Hassnat says, but stresses that "receiving the diagnosis is one thing... having the right support is another".

    • For context: Broadly, it is now agreed that what was once referred to as Asperger syndrome is part of the autism spectrum. Some people who received a diagnosis of Asperger syndrome continue to use this terminology to refer to themselves.
  15. BBC Verify

    ADHD diagnosis rates have risen in children and young peoplepublished at 10:14 BST

    The proportion of children and young people in England who have been diagnosed with ADHD has risen among all age groups of children and young people over the last 25 years, according to data published in the official review.

    BBC Verify’s analysis of the figures shows these diagnosis rates have risen:

    • From 0.5% to 2.7% in the 6-11 age range
    • From 0.3% to 3.9% between 12-17
    • From nearly zero to 3.1% between 18-24

    Another point to note in the data is it shows the most significant rise in all three age groups since 2020, which you can see on the chart below.

    This Flourish post cannot be displayed in your browser. Please enable Javascript or try a different browser.

  16. Assessments demand increasing because of reduced stigma, says NHS psychiatristpublished at 10:04 BST

    Gabriela Pomeroy
    Live reporter

    Dr Salim Jakhra - a man with greying black hair and a beard, wearing a white shirt and smiling whilst posing for a picture at the seaside, the sea behind himImage source, Dr Salim Jakhra

    I spoke to Dr Salim Jakhra, a consultant psychiatrist at Child and Adolescent Mental Health Services (CAMHS) in Brent in London - part of the Central & North West London NHS Trust.

    He personally carries out the ADHD and autism assessments of young people.

    "Demand has increased over the past 10 years - we are seeing a lot more referrals coming though for autism and ADHD - there is reduced stigma about neurodiversity."

    "Over the past year we have been setting up a service called Shine – which stands for Specialist Hub for Integrated Neurodevelopmental Evaluation" to cope with the increased demand for assessments in the NHS.

    He says this is to try to get the waiting lists down and to avoid postcode disparities in care.

    He adds that the "assessment process is very thorough" and he doesn't think there is over-diagnosis.

    "Neurodiversity assessments are complicated - we need to spend time with the patient and have a thorough developmental history from the parents and school to see if symptoms are pervasive. They take a quite a lot of time.”

  17. 'You basically go on the list and wait however long until you get to the top'published at 09:40 BST

    A man in his late 30s (L) poses for a selfie with his seven-year-old son (R) who's wearing a black shirt

    Ryan and his wife knew there was something different with their son Atlas when he was around 12 to 18 months old and missing development milestones.

    But it took three years to get an autism assessment. As time passed, his needs became increasingly clear. Now nearly seven, Atlas is non-verbal, still wears nappies and relies on others for all aspects of daily care.

    Despite this, Ryan says there was no fast-track route for children with the most complex needs. "You basically go on the list and wait however long until you get to the top."

    The wait left the family racing against time to secure support before Atlas started school. Ryan and his wife feared he would be placed in a mainstream school.

    "We were terrified," Ryan says. "Anyone who has a child like Atlas will have the same panic that they'll start in a mainstream school where it's not safe."

    The strain was immense. "It was like I had two jobs," Ryan adds. "I was going to work and then coming home and dealing with these things."

    Atlas was eventually diagnosed only months before starting school.

  18. Review highlights 'urgent truth' of children's distress - children's commissioner for Englandpublished at 09:31 BST

    A nine and ten-year-old boy (the photographer's son) use a iPad to play video games on May 2, 2021, in Bath, England.Image source, Getty Images

    Children are distressed and the Fonagy review "highlights an urgent truth", the children's commissioner for England says.

    "We must confront the difficult questions about changes in childhood, and we must build a world in which they can thrive," Dame Rachel De Souza says.

    She points to the story behind the data, which is "children whose lives are on hold for months and, in some cases, years waiting for support they urgently need".

    De Souza, who contributed to the review, says its findings on under-diagnosis, mis-diagnosis and over-diagnosis fit with what she hears from children and professionals.

    She goes on to repeat calls for an overhaul of mental health, community health, social care and education systems so that they can "put the needs of [a] child above an insistence on diagnosis".

  19. 'My ADHD diagnosis helped me understand where I trip up, and I can tell people in advance'published at 09:16 BST

    (L-R): Dr Mine Conkbayir and Paul Whitehouse
    Image caption,

    (L-R): Dr Mine Conkbayir and Paul Whitehouse

    BBC Breakfast has been speaking to comedian Paul Whitehouse and Dr Mine Conkbayir, who host the podcast I'm ADHD, No You're Not.

    Conkbayir says that getting diagnosed with ADHD "makes a fundamentally huge difference", citing her own experience and describing her diagnosis as "really helpful".

    "I now understand where I trip up, where I struggle and I can tell people in advance."

    Some of these struggles include following multi-step instructions and losing the thread of what she's being told, she says.

    Whitehouse notes that while he's seen "a split" in whether people find a diagnosis helpful, it has helped many people "understand their behaviours much better" and "not just think of themselves as lazy - this is what they're labelled".

  20. Review chair outlines three key findings of the reportpublished at 09:08 BST

    Prof Peter Fonagy in dark grey suit, white shirt and burgundy tie speaks directly into camera while being filmed inside New Broadcasting House, the BBC newsroom blurred in the backgroundImage source, BBC Breakfast

    Professor Peter Fonagy, who chaired the review, has outlined three key findings in an interview with BBC Breakfast:

    • A "very real substantial rise in mental ill-health", particularly among young people - it increased by 50% between 1993 and the present day
    • An increase in the "co-occurrence of different diagnoses", meaning more people have common mental disorders (like anxiety and depression) as well as ADHD and autism
    • An increase in the number of diagnoses of people with ADHD and autism, rather than a rise in how many people have either condition